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Topic Title: Dingpatch Bone Marrow Transplant update, , , , , Topic Summary: Created On: 04/20/2021 01:49 PM |
Linear : Threading : Single : Branch |
- dingpatch | - 04/20/2021 01:49 PM |
- Central Floridave | - 04/21/2021 05:18 AM |
- theglide | - 04/22/2021 09:54 AM |
- Cole | - 04/23/2021 06:37 AM |
- dingpatch | - 04/23/2021 07:30 AM |
- Cole | - 04/23/2021 10:38 AM |
- dingpatch | - 04/24/2021 05:01 AM |
- Cole | - 04/24/2021 08:03 AM |
- dingpatch | - 04/26/2021 06:55 PM |
- dingpatch | - 05/09/2021 02:29 PM |
- Cole | - 05/10/2021 04:28 AM |
- dingpatch | - 05/12/2021 06:01 AM |
- dingpatch | - 05/13/2021 11:21 AM |
- dingpatch | - 05/29/2021 07:02 AM |
- Cole | - 05/30/2021 07:52 AM |
- dingpatch | - 06/01/2021 05:51 AM |
- dingpatch | - 06/01/2021 01:43 PM |
- Keith | - 06/08/2021 10:20 AM |
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04/24/2021 05:01 AM
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I am a congenital idiot, and I have not otherwise stayed at a Holiday Inn recently BUT, , , , , , The results of my Cardiac Stress Test are in and, as such, this is my Official self diagnosis:
Primary Diagnostic Code: NO ALERT REQUIRED I feel like Super Man !!!! ------------------------- Dora Hates You Edited: 04/24/2021 at 10:34 AM by dingpatch |
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04/24/2021 08:03 AM
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I am a congenital idiot, and I have not otherwise stayed at a Holiday Inn recently BUT, , , , , , The results of my Cardiac Stress Test are in and, as such, this is my Official diagnosis: Primary Diagnostic Code: NO ALERT REQUIRED I feel like Super Man !!!! HELL YEAH! ------------------------- I was right. |
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04/26/2021 06:55 PM
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The VA has "activated" my Donor so, it won't be long now and I'll be off to Nashville.
------------------------- Dora Hates You |
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05/09/2021 02:29 PM
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No schedule yet, The Nashville VA is waiting for schedule info from the National Marrow Donor Program (Be The Match).
------------------------- Dora Hates You |
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05/10/2021 04:28 AM
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make sure to drink some glue so this one sticks. You have been through enough, time for some easy livin and fin makin.
------------------------- I was right. |
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05/12/2021 06:01 AM
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The Donor can't meet the schedule that the VA wanted and, as such, his "new" date puts me outside of the "60 day window" since my last check-up in Nashville, , , , so, , , ,! I need to fly to Nville on June 2nd, have new Bone Marrow Biopsy and blood work on June 3rd, and fly home on June 4th. Then, , , , , , If All Goes Well, , , , I will be back in Nville on July 5th to start the Real Thing.
------------------------- Dora Hates You |
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05/13/2021 11:21 AM
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UPDATE:
Probably won't have to go to Nville on June 3rd. The Lake Nona VA is trying to work me in for a BMB there, no matter. My nurse laid out a pretty precise Nashville schedule for me but, 8 fooking days of chemo!!!!!!!!!!!!!: --07/05/21: Arrive Nashville --07/06/21: eval #3 + Bone marrow --07/07/21: testing --07/08/21: nothing --07/09/21: see MD --07/10/21: nothing --07/11/21: nothing --07/12/21: preadmits and nothing to eat or drink after 2200 --07/13/21: PICC line placement --07/14/21: Day -8: fludarabine (outpatient) and then admit to hospital -07/15/21: Day -7: fludarabine -07/16/21: Day -6: fludarabine -07/17/21: Day -5: fludarabine & Busulfan -07/18/21: Day -4: fludarabine & Busulfan -07/19/21: Day -3: fludarabine -07/20/21: Day -2: thymoglobulin -07/21/21: Day -1: thymoglobulin -07/22/21: Day 0: stem cell infusion -07/23/21à ________: D+1 to D+100: stay in Nashville for post-transplant follow up and recovery ------------------------- Dora Hates You Edited: 05/15/2021 at 05:08 AM by dingpatch |
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05/29/2021 07:02 AM
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YAY!!!!!!!!!!!
I got to ring the Chemo Bell yesterday!!! Completed 50 days of the Vidaza chemo since January 2020!!! 2 injections every visit!! My MDS (Myelodysplastic Syndromes) is not cured and will otherwise stick to me until I get the Bone Marrow Stem Cell Transplant in July. So, I'm getting ready to spend 4 months in Nashville!!! ------------------------- Dora Hates You |
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05/30/2021 07:52 AM
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You are one tough bitch!
Now go on and beat this mofo! ------------------------- I was right. |
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06/01/2021 05:51 AM
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Just heard from my Transplant Nurse, Donna!!!
My Donor is in process and Donna says for me to "lock down" the schedule above!!! "Good morning. Lock it down! --05/24/21: BMBx local: done restart bridging chemo locally Donor: start GCSF 6/11/21 collect 6/15/21 Cells cryo: 06/16/21" ------------------------- Dora Hates You |
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06/01/2021 01:43 PM
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I am so very Blessed to have Donna on My Team!!!! Make no mistakes about this, , , , , in the "world" of Bone Marrow/Stem Cell Transplants, , , , , she is at The Very Top of the List in the USA!!!
------------------------- Dora Hates You Edited: 06/01/2021 at 01:43 PM by dingpatch |
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06/08/2021 10:20 AM
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Hoping the best for you!
------------------------- "Surf everyday as though it were a gift!" -- John Holeman |
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Dingpatch Bone Marrow Transplant update, , , , ,
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