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Topic Title: Dingpatch Bone Marrow Transplant update, , , , ,
Topic Summary:
Created On: 04/20/2021 01:49 PM
Linear : Threading : Single : Branch
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 04/20/2021 01:49 PM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Central Floridave - 04/21/2021 05:18 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - theglide - 04/22/2021 09:54 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Cole - 04/23/2021 06:37 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 04/23/2021 07:30 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Cole - 04/23/2021 10:38 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 04/24/2021 05:01 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Cole - 04/24/2021 08:03 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 04/26/2021 06:55 PM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 05/09/2021 02:29 PM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Cole - 05/10/2021 04:28 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 05/12/2021 06:01 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 05/13/2021 11:21 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 05/29/2021 07:02 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Cole - 05/30/2021 07:52 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 06/01/2021 05:51 AM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - dingpatch - 06/01/2021 01:43 PM  
 Dingpatch Bone Marrow Transplant update, , , , ,   - Keith - 06/08/2021 10:20 AM  
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 05/10/2021 04:28 AM
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Cole

Posts: 68180
Joined Forum: 07/22/2003

make sure to drink some glue so this one sticks. You have been through enough, time for some easy livin and fin makin.

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I was right.
 05/12/2021 06:01 AM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

The Donor can't meet the schedule that the VA wanted and, as such, his "new" date puts me outside of the "60 day window" since my last check-up in Nashville, , , , so, , , ,! I need to fly to Nville on June 2nd, have new Bone Marrow Biopsy and blood work on June 3rd, and fly home on June 4th. Then, , , , , , If All Goes Well, , , , I will be back in Nville on July 5th to start the Real Thing.

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Dora Hates You
 05/13/2021 11:21 AM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

UPDATE:

Probably won't have to go to Nville on June 3rd. The Lake Nona VA is trying to work me in for a BMB there, no matter.

My nurse laid out a pretty precise Nashville schedule for me but, 8 fooking days of chemo!!!!!!!!!!!!!:

--07/05/21: Arrive Nashville
--07/06/21: eval #3 + Bone marrow
--07/07/21: testing
--07/08/21: nothing
--07/09/21: see MD
--07/10/21: nothing
--07/11/21: nothing
--07/12/21: preadmits and nothing to eat or drink after 2200
--07/13/21: PICC line placement
--07/14/21: Day -8: fludarabine (outpatient) and then admit to hospital
-07/15/21: Day -7: fludarabine
-07/16/21: Day -6: fludarabine
-07/17/21: Day -5: fludarabine & Busulfan
-07/18/21: Day -4: fludarabine & Busulfan
-07/19/21: Day -3: fludarabine
-07/20/21: Day -2: thymoglobulin
-07/21/21: Day -1: thymoglobulin
-07/22/21: Day 0: stem cell infusion
-07/23/21à ________: D+1 to D+100: stay in Nashville for post-transplant follow up and recovery

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Dora Hates You

Edited: 05/15/2021 at 05:08 AM by dingpatch
 05/29/2021 07:02 AM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

YAY!!!!!!!!!!!

I got to ring the Chemo Bell yesterday!!!

Completed 50 days of the Vidaza chemo since January 2020!!! 2 injections every visit!!

My MDS (Myelodysplastic Syndromes) is not cured and will otherwise stick to me until I get the Bone Marrow Stem Cell Transplant in July. So, I'm getting ready to spend 4 months in Nashville!!!

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Dora Hates You
 05/30/2021 07:52 AM
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Cole

Posts: 68180
Joined Forum: 07/22/2003

You are one tough bitch!

Now go on and beat this mofo!

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I was right.
 06/01/2021 05:51 AM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

Just heard from my Transplant Nurse, Donna!!!

My Donor is in process and Donna says for me to "lock down" the schedule above!!!

"Good morning. Lock it down!

--05/24/21: BMBx local: done
restart bridging chemo locally

Donor:
start GCSF 6/11/21
collect 6/15/21
Cells cryo: 06/16/21"


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Dora Hates You
 06/01/2021 01:43 PM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

I am so very Blessed to have Donna on My Team!!!! Make no mistakes about this, , , , , in the "world" of Bone Marrow/Stem Cell Transplants, , , , , she is at The Very Top of the List in the USA!!!

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Dora Hates You

Edited: 06/01/2021 at 01:43 PM by dingpatch
 06/08/2021 10:20 AM
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Keith

Posts: 436
Joined Forum: 07/28/2003

Hoping the best for you!

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"Surf everyday as though it were a gift!" -- John Holeman
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