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Topic Title: Dingpatch's 2021 Bone Marrow/Stem Cell Transplant Blog Thread
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Created On: 06/30/2021 08:05 AM
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 06/30/2021 08:05 AM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

I (we) will drive to Nashville on July 5th and then have my first appointment on July 6th. Tuesday the 6th will start with extensive blood labs and then a Bone Marrow Biopsy (my 13th!!), then a MUGA scan. Wednesday the 7th starts with a PET/CT scan. The 8th is "off". Then on the 9th I have a Pulmonary test. The "real deal" starts on the 12th.

As of now, this is my schedule:

--07/05/21: Arrive Nashville
--07/06/21: eval #3 + Bone marrow
--07/07/21: testing
--07/08/21: nothing
--07/09/21: see MD
--07/10/21: nothing
--07/11/21: nothing
--07/12/21: preadmits and nothing to eat or drink after 2200
--07/13/21: line placement
--07/14/21: Day -8: fludarabine (outpatient) and then admit to hospital
-07/15/21: Day -7: fludarabine
-07/16/21: Day -6: fludarabine
-07/17/21: Day -5: fludarabine & Busulfan
-07/18/21: Day -4: fludarabine & Busulfan
-07/19/21: Day -3: fludarabine
-07/20/21: Day -2: thymoglobulin
-07/21/21: Day -1: thymoglobulin
-07/22/21: Day 0: stem cell infusion
-07/23/21? ________: D+1 to D+100: stay in Nashville for post-transplant follow
up and recovery

Future Appointments: Date Time Clinic
======================================================
NA-BMT-Infusion 7/6/2021@ 8:00
NA-BM Biopsy 7/6/2021@ 9:00
NA-BMT 7/6/2021@ 10:00
NA-Nuc Med/MUGA 7/6/2021@ 2:00
NA-PET/CT SCAN 7/7/2021@ 7:00
NA-PFT/Pulmonary 7/9/2021@ 11:30
NA-PICC Line 7/13/2021@ 700

And, , , , , So, I did have a good talk this morning with a nice lady at the Nashville VA. Yes, I will go back to Nashville for a 2 to 3 day "check-up" in about 30 days after I initially get back to FLA. From there, for the "next year or two", , , , I will go back to Nashville every 4 to 6 weeks for check-ups!!!!!!!!! Maybe I can get a room with Trisha and Garth??!!?? If nothing else, I'll be racking up the American Airline miles.

More to come as it occurs.

Edited: 07/01/2021 at 05:21 AM by dingpatch
 06/30/2021 09:34 AM
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Burry

Posts: 6100
Joined Forum: 07/22/2003

how come NO ice cream breaks???

You got this!!!!

-------------------------
BurrysBreak

anyone know what happened to The Pandemic Response Team ? ? ? ...asking for a sick Nation.
 07/03/2021 05:23 PM
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dingpatch

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Burry, no ice cream but, plenty of sausage gravy!!!
 07/04/2021 02:24 PM
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Cole

Posts: 54358
Joined Forum: 07/22/2003

Originally posted by: Burry

how come NO ice cream breaks???[IMG][/IMG]



You got this!!!![IMG][/IMG]


You would think they would throw in a hooker or two to keep the spirits up. Yes, doctors are geniuses, but they sure lack creativity.



-------------------------
So long and thanks for all the fish.

Edited: 07/04/2021 at 02:25 PM by Cole
 07/04/2021 03:19 PM
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dingpatch

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Joined Forum: 07/24/2003

All packed and ready for the drive, first thing tomorrow morning (Monday).
 07/05/2021 09:38 AM
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Cole

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safe travels and to coin an English term, keep your pecker up!

-------------------------
So long and thanks for all the fish.
 07/05/2021 11:41 AM
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Burry

Posts: 6100
Joined Forum: 07/22/2003

Cole You would think they would throw in a hooker or two to keep the spirits up.


i hear the Co-Pay is High!!!


Good Luck Ding!

-------------------------
BurrysBreak

anyone know what happened to The Pandemic Response Team ? ? ? ...asking for a sick Nation.
 07/07/2021 05:21 PM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

Got to the hotel about 6:30 PM local Monday. Started neeedles and such first thing Tuesday morning and pretty much finished all the "testing" this morning with a PET Scan. But to say "needles" is a cop-out, they accessed my chemo port and all the clinics used it to inject their "stuff" into me, no viens needed!

The Homewood Suites is nice and is pretty much in the middle of everything! Less than a half mile from the VA Medical Center at Vanderbilt U.

Ate at Martin's BBQ Joint Monday night. Had a late lunch at Hattie B's Tuesday. and had lunch today at Jack's downtown on Broadway. Eating our way around Nashville, but did go to Kroger's yesterday for "normal" food to make in the room!
 07/08/2021 07:10 AM
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Central Floridave

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Good luck Dingpatch. Wishing you the best and a full recovery! Now I'm hungry for BBq.
 07/22/2021 08:29 AM
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dingpatch

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The donated stem cells are scheduled to be delivered to my room from Vanderbilt at 12:00 today!!!!!!!!

3, 2, 1,,,,,, Blast Off
 07/22/2021 06:42 PM
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Cole

Posts: 54358
Joined Forum: 07/22/2003

Do you feel better after the transfusion or whatever in the hell they do?

-------------------------
So long and thanks for all the fish.
 08/10/2021 02:37 PM
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1974

Posts: 728
Joined Forum: 07/27/2021

How ya doin Ding?
 08/10/2021 03:26 PM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

I got discharged from inpatient on Friday, Aug 6th. My 3rd First Birthday is July 22, 2021. I was inpatient for 24 days! I had a few "rough" days but I do know that I was doing way better than the other 6 patients in The MTU (Marrow Transplant Unit)! I feel pretty good but will need to visit the Bone Marrow Transplant Clinic (The Clinic) every Monday, Wednesday and Friday for labs, tests and medication changes and such until October 30th.
 08/11/2021 05:05 AM
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Greensleeves

Posts: 17586
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Great ding!! Stay tough!

-------------------------
 08/11/2021 07:32 AM
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1974

Posts: 728
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Good to hear. Best of luck with everything

Edited: 08/11/2021 at 07:32 AM by 1974
 08/12/2021 06:31 AM
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Cole

Posts: 54358
Joined Forum: 07/22/2003

Every day is one step closer to normal life. Good on ya mate!

-------------------------
So long and thanks for all the fish.
 08/21/2021 08:15 AM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

Today is Day 30, since the transplant! My Vandy doctors tell me that I am doing Very Good!
 08/21/2021 09:46 AM
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Cole

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Originally posted by: dingpatch

Today is Day 30, since the transplant! My Vandy doctors tell me that I am doing Very Good!


WOOT!



-------------------------
So long and thanks for all the fish.
 08/22/2021 09:00 AM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

And, I must thank seasmyth for being my "first shift" Care-Giver here in Nashvegas!!!!! He is a Pro
 08/24/2021 11:02 AM
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dingpatch

Posts: 16759
Joined Forum: 07/24/2003

The Vandy Girls are out in full force rocking the campus. I figure that they only enroll Homecoming Queens!!!!!!!!
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